Zack Update 12/27/2005
It’s hard to believe that a year has passed since I wrote the story below. So much has changed since then. Amber and I are now viewing Zack’s disorder as a lifestyle and not an illness or disorder. We just have to make sure Zack eats every 6 or so hours and limit the amount of fat he eats in a day. If my memory serves me right his fat intake is around 10 grams a day. Of course this doesn’t include the fat he gets from the MCT oil. MCT oil is comprised mostly of medium chain fats. Zack is able to break these down fine since they are shorter than the long chain fats which he can’t break down.
In addition to everything that has happened with Zack I have had a big year of change myself. I decided to go back to school and persue my bachelor’s in computer information systems. I was also promoted to AVP at work and direct the work of a team of programmers for a 700 seat call center!
Back to Zack….He is doing everything he should at this age. Amber and I were a little concerned over the summer because he wasn’t making any effort to talk, but that has since been dismissed. Zack probably says close to 100 words and that list is growing. He LOVES Sponge Bob and Blue’s Clues and will walk around the house all day saying “Bob, Bob, Bob”. It brings a smile to my face every time I hear it.
Just like most children his age he is dreadfully afraid of Santa (which he calls HoHo). We tried to take him twice to see Santa but both times he cried. But he LOVES opening presents. After a couple presents on Christmas he was in the full swing of opening them. He could be a professional present opener, HA! I thought you all would like to see a video of how Zack is doing. So here is Zack opening a Sponge Bob and Blue’s Clues DVD. You’ll hear him say Blue, Girl, Bob, All Right, and Bye…so cute!